Behçet's UK Family Day 2019
By Behçet's UK
Date and time
Sat, 15 Jun 2019 10:00 - 17:30 GMT+1
Location
Skreens Park Activity Centre
Skreens Park Road Chelmsford CM1 4NL United KingdomDescription
This will be our fourth Behçet's Family Day and it is a chance for members of Behçet's UK to get together for a FREE fun day out with their family and friends.
It also gives everyone the opportunity to make new friends, meet other families affected by Behçet's and try some fun activities.
Please see our website for more details and answers to any questions you may have.
Organised by
Behçet’s UK (formerly Behçet’s Syndrome Society) was formed in 1983 by Judith Buckle (1950-1997).
Behçet’s UK: How we help
- We were instrumental in establishing Specialist Centres for Behçet’s in NHS England and we now lobby for equivalent care in Wales, Scotland and Northern Ireland.
- Hold an Annual General Meeting and Conference. Allowing those affected by Behçet’s to hear from Behçet’s specialists and patients, ask questions and meet others with this rare condition.
- Publish a quarterly newsletter keeping our members up to date with the Society’s activities including lobbying on rare diseases along with our work with researchers.
- Maintain an active Medical Advisory Panel with eminent representatives from each of the medical disciplines involved in Behçet’s to whom questions can be directed.
- Manage a website which includes factsheets written by lead Behçet’s clinicians on each of the areas affected by Behçet’s.
- Provide a Helpline run by volunteers who have an understanding of Behçet’s.
- Facilitate peer to peer support groups to minimise the isolation experienced by patients.
- Award small personal grants for items which will help members manage their Behçet’s day to day.
- Host an annual event for members to have fun with their friends, family and carers and get to know others affected by Behçet’s.